What is ITP? Information for parents.

This page explains about Immune Thrombocytopenic Purpura (ITP), which is a blood disorder affecting the platelets. It also explains what to expect when your child is diagnosed with the condition.

Download the leaflet in pdf.

Parent/Patient consent forms

The UK Paediatric ITP working party are required to obtain parental/patient consent to include the patient in the registry.

Download the parent/patient consent form

Download the patient re-consent form

Information for patients

These documents cover the following questions you might have and are organised by age group:

• Q – Why are you collecting this information?
• Q – Why have I been chosen?
• Q – Does I have to take part?
• Q – What do I have to do?
• Q – What will happen if I take part?
• Q – Might anything about this upset me?
• Q – Will this help me?
• Q – What if I have any worries or questions?
• Q – What will happen to the results of the study?

• Information for under 10 year-olds
• Information for you if aged 10 – 12 years
• Information for you if aged 12 – 14 years
• Information for you if aged 14 – 18 years

Information for parents

This document covers the following questions you may have as a parent regarding the registry:

• Q – What is the purpose of the registry?
• Q – Why has my child been chosen?
• Q – Does my child have to take part?
• Q – What do I have to do?
• Q – What will happen if my child takes part?
• Q – Are there any disadvantages or risks involved in my child’s participation in the project?
• Q – What are the possible benefits of taking part?
• Q – Will my child’s participation in this study be kept confidential?
• Q – What will happen to the results of the study?
• Q – Who is organising and funding the research?

• Read the full Information for Parents document

For further information regarding ITP, please read ‘What is ITP?’ Information for parents, in PDF.