What is ITP? Information for parents.
This page explains about Immune Thrombocytopenic Purpura (ITP), which is a blood disorder affecting the platelets. It also explains what to expect when your child is diagnosed with the condition.
Parent/Patient consent forms
The UK Paediatric ITP working party are required to obtain parental/patient consent to include the patient in the registry.
Information for patients
These documents cover the following questions you might have and are organised by age group:
- Q – Why are you collecting this information?
- Q – Why have I been chosen?
- Q – Does I have to take part?
- Q – What do I have to do?
- Q – What will happen if I take part?
- Q – Might anything about this upset me?
- Q – Will this help me?
- Q – What if I have any worries or questions?
- Q – What will happen to the results of the study?
Information for parents
This document covers the following questions you may have as a parent regarding the registry:
- Q – What is the purpose of the registry?
- Q – Why has my child been chosen?
- Q – Does my child have to take part?
- Q – What do I have to do?
- Q – What will happen if my child takes part?
- Q – Are there any disadvantages or risks involved in my child’s participation in the project?
- Q – What are the possible benefits of taking part?
- Q – Will my child’s participation in this study be kept confidential?
- Q – What will happen to the results of the study?
- Q – Who is organising and funding the research?
For further information regarding ITP, please read ‘What is ITP?’ Information for parents, in PDF.
